A joyful heart is good medicine, but a crushed spirit dries up the bones.
Barbra Sonnen-Hernandez, Author, Advocate and Public Speaker
Enjoy the Gallery of Photo's and Video's
Our RARE DISEASE DAY Rally 2013 at the Texas State Capitol, Austin, Tx. on February 28.
Thank you to our many rare disease organizations, speakers, volunteers and Legislatures who helped make this a big success!
With State Representative Elliott Naishtat attending the Resolution for Rare Disease Day at the House Chambers at the Texas State Capitol, Austin, Tx.
Also in picture is far left, Deborah Trejo Executive Director with VCFS 22/q Texas and next to her is Kelly Trout, Founder of International WAGR Syndrome and me.
You can view the Resolution below:
With Texas State Senator Dr. Donna Campbell attending the Resolution for Rare Disease Day at the Senate Chambers at the Texas State Capitol, Austin, Tx. You can view the Resolution below:
Speaking at the Rare Disease Day rally at the Texas State Capitol, Austin, Tx.
Speaking at McNeil High School Health Academy Students, Round Rock, Tx.
Speaking at Seton Williamson Hospital Board of Directors and Staff, Round Rock, Tx.
Book Signing Events at Barnes & Noble, San Antonio, Tx. and Half Price Books, Austin, Tx.
Why didn't I die? Book information
Patient Advisory Committee Members of Central Tx. Rehabilitation Hospital, Austin, Tx.
On right is Frieda Borth, Center Back is Dr. Mary Ann Gonzales and Center front is Javier Corona and me on the left.
If you would like Barbra to speak at your next event or media coverage, email at firstname.lastname@example.org If someone you know has Guillain-Barre Syndrome or any other type of rare disease, and you need help and support, please email us at email@example.com